Events

Patient Representatives: register for EURORDIS OpenAcademy2025!

Dates: 2/06/2025 - 5/11/2024
Time: 9:00AM - 5:00PM
Location: Barcelona
Category: Training / Learning & Development

Northern Ireland Disability Sports Event

Date: 18/04/2025
Time: 10:30AM - 4:30PM
Location: South Lake Leisure Centre, 1 Lake Road Craigavon Co Armagh BT64 1AS
Category: Community Event

Rare Disease Research Conference 2025

Date: 10/04/2025
Time: 9:00AM - 5:30PM
Location: O'Reilly Hall, University College Dublin Belfield Dublin 4 Ireland
Category: Conference / Symposium

Rare Disease Research Network Webinar 3

Date: 7/04/2025
Time: 12:00PM - 1:00PM
Location: Online
Category: Information Event

Rare Disease Research Network Webinar 2

Date: 2/04/2025
Time: 12:00PM - 1:00PM
Location: Online
Category: Information Event

Rare Disease Research Network Webinar 1

Date: 31/03/2025
Time: 12:00PM - 1:00PM
Location: Online
Category: Information Event

Helium Arts - Distance Creates Online Spring Saturdays

Dates: 8/03/2025 - 12/04/2025
Time: 12:01PM - 12:01PM
Location: Online
Category: General / Other

LifeArc Translational Science Summit on MND and Rare Dementia

Date: 5/03/2025
Time: 9:00AM - 5:30PM
Location: In person Kings Place, London
Category: Conference / Symposium

Rare Disease RAREiTEA at Bangor Castle

Date: 19/02/2025
Time: 7:30PM - 9:30PM
Location: Bangor Castle Castle Park Road Bangor BT20 4TF
Category: General / Other

Rare Disease Research Conference 2025 *CALL FOR ABSTRACTS*

Date: 7/02/2025
Time: 5:00PM - 5:00PM
Location: Online submission
Category: Conference / Symposium

Launch of the REMEDi4ALL Digital Academy (Webinar)

Date: 29/01/2025
Time: 12:30PM - 1:30PM
Location: Online
Category: Lecture / Talk / Discussion, Workshop / Seminar / Course

Paediatric Dystonia in Rare Conditions Webinar

Date: 22/01/2025
Time: 4:00PM - 5:30PM
Location: Online Webinar
Category: Lecture / Talk / Discussion

Together4RD & ERICA industry collaboration webinar

Date: 16/01/2025
Time: 5:00PM - 5:45PM
Location: Online
Category: Lecture / Talk / Discussion

International PPI Network & Cochrane Learning Live Webinar

Date: 4/12/2024
Time: 3:00PM - 4:00PM
Location: Online
Category: Lecture / Talk / Discussion

International PPI Network & Cochrane Learning Live Webinar

Date: 26/11/2024
Time: 5:00PM - 6:00PM
Location: Online
Category: Lecture / Talk / Discussion

Cup O'Collaboration

Date: 15/11/2024
Time: 12:00PM - 1:00PM
Location: Zoom
Category: Community Event

Adapted Paddling Session

Date: 9/11/2024
Time: 9:00AM - 3:00PM
Location: Moira Lakes Paddle Sports & Event Centre 32b Old Church Lane Aghalee BT67 0EY
Category: Community Event

Carer Poverty Commission NI Conference 2024

Dates: 7/11/2024 - 7/10/2024
Time: 10:00AM - 2:00PM
Location: Tullyglass Hotel, Ballymena
Category: Community Event

ERN ITHACA Meeting on DNAm profiling in clinic

Date: 6/11/2024
Time: 2:00PM - 5:15PM
Location: Online
Category: Community Event, Workshop / Seminar / Course

Young Kidney Patient Free Webinar

Date: 4/11/2024
Time: 10:34AM - 10:34AM
Location: Teams call
Category: Community Event

International PPI Network & Cochrane Learning Live Webinar

Date: 10/10/2024
Time: 9:00AM - 10:00AM
Location: Online
Category: Lecture / Talk / Discussion

International PPI Network & Cochrane Learning Live Webinar

Date: 25/09/2024
Time: 2:00PM - 3:00PM
Location: Online
Category: Lecture / Talk / Discussion

Northern Ireland Registry for Inherited Cardiac Conditions Project.

Date: 25/09/2024
Time: 10:00AM - 12:00PM
Location: Assembly Buildings Conference Centre 2-10 Fisherwick Place Belfast BT1 6DW
Category: Community Event

Unique Webinar: Speech and Language in Rare Genetic Conditions - what do parents need to know?

Date: 17/09/2024
Time: 1:00PM - 2:00PM
Location: Online
Category: Lecture / Talk / Discussion

International PPI Network & Cochrane Learning Live Webinar

Date: 28/08/2024
Time: 10:00AM - 11:00AM
Location: Online
Category: Lecture / Talk / Discussion

CDH Community Conference

Date: 10/08/2024
Time: 2:00PM - 4:00PM
Location: Seminar rooms 1&2 W5 The Odyssey 2, Queen's Quay Belfast BT3 9QQ
Category: Community Event, Conference / Symposium

Parkfest 2024

Date: 28/07/2024
Time: 12:00PM - 4:00PM
Location: Connswater Community Greenway
Category: Community Event

Carer Support Event

Date: 22/07/2024
Time: 10:00AM - 12:00PM
Location: Holywood Road Jobs & Benefits Office
Category: Community Event

Rare Storytelling Webinar

Date: 16/07/2024
Time: 5:00PM - 6:00PM
Location: Zoom online
Category: Information Event

Patient Engagement 101

Date: 19/06/2024
Time: 4:00PM - 6:00PM
Location: Online
Category: Community Event

Carers NI Carer Policy Forum : NI Assembly Information Session

Date: 11/06/2024
Time: 1:00PM - 2:30PM
Location: Online Zoom Session
Category: Community Event

Carers Week - Information Fair

Date: 10/06/2024
Time: 10:30AM - 2:00PM
Location: Adair Arms, Ballymena
Category: Community Event

ERKNet/ESPN Webinar: "ADPKD in children" by Djalila Mekahli

Date: 4/06/2024
Time: 3:00PM - 4:00PM
Location: Online
Category: Lecture / Talk / Discussion

Online workshop for Carers of people living with rare disease in Northern Ireland

Date: 31/05/2024
Time: 10:00AM - 12:00PM
Location: Online
Category: Community Event

International Conference on the Science & Practice of Rare Diseases

Dates: 28/05/2024 - 29/05/2024
Time: 9:00AM - 5:00PM
Location: London UK
Category: Conference / Symposium

RAiN Co-Ordination of Care Webinar

Date: 23/05/2024
Time: 10:00AM - 2:00PM
Location: Zoom
Category: Workshop / Seminar / Course

Target trial emulation using observational data in maternal and child health research.

Date: 23/05/2024
Time: 4:30PM - 9:00PM
Location: Zoom
Category: Workshop / Seminar / Course

Supporting children and families living with rare diseases in NI

Date: 15/05/2024
Time: 9:30AM - 1:30PM
Location: Dunsilly Hotel, 20, Dunsilly Road, BT41 2JH
Category: Community Event

Overview of biostatistical approaches in clinical research of rare diseases

Date: 15/05/2024
Time: 3:00PM - 4:00PM
Location: Online
Category: Lecture / Talk / Discussion

Early Career Researcher Forum

Date: 10/05/2024
Time: 11:00AM - 3:00PM
Location: Wellcome-Wolfson Institute For Experimental Medicine School of Medicine, Dentistry and Biomedical Sciences Queen's University Belfast
Category: Conference / Symposium

Global Genes Webinar: Coping skills for Caregivers

Date: 9/05/2024
Time: 8:00PM - 9:00PM
Location: Online
Category: Information Event

24th International Conference on Integrated Care ICIC24 Belfast – April 22-24 2024

Dates: 22/04/2024 - 24/03/2024
Time: 9:00AM - 5:00PM
Location: ICC Belfast 2 Lanyon Place, Belfast, BT1 3WH
Category: Conference / Symposium

Accessibility and Inclusion Workshop on the Connswater Community Greenway

Dates: 22/03/2024 - 23/03/2024
Time: 8:00AM - 11:00AM
Location: Connswater Community Greenway
Category: Community Event

Cup O'Collaboration: Webinar with Metabolic Support UK

Date: 19/03/2024
Time: 1:00PM - 2:00PM
Location: https://ucd-ie.zoom.us/webinar/register/WN_vqWeuiM7TEWy4Y8bV_FVaQ#/registration
Category: Community Event

Cup O'Collaboration

Date: 4/03/2024
Time: 12:00PM - 1:00PM
Location: Zoom https://ucd-ie.zoom.us/j/63352211883?pwd=OE53YXAvREVpeWhFY3kwaWVFTUxKUT09
Category: Community Event

Rare Disease Day 2024 Annual North and South Conference

Date: 29/02/2024
Time: 9:45AM - 5:00PM
Location: Farmleigh House, Phoenix Park Dublin
Category: Community Event

Everyone can participate in the Global Chain of Lights and Share Your Colours!

Date: 29/02/2024
Time: 7:00PM - 8:00PM
Location: Everywhere/Anywhere
Category: Community Event

Ulysses Neuroscience Rare Disease Day

Date: 29/02/2024
Time: 12:00PM - 4:00PM
Location: Cherrywood Business Park, Co. Dublin
Category: Community Event

Ards and North Down Borough Council: Disability Employment and Support Day

Date: 28/02/2024
Time: 9:30AM - 1:00PM
Location: Signal Centre Balloo Road, Bangor BT19 7PD
Category: Information Event

NI Science Festival - Kidney Canvas

Date: 18/02/2024
Time: 1:30PM - 3:00PM
Location: QUB Medical Biology Centre, Lecture Theatre 2
Category: Exhibition

RAiN's Children's Research Advisory Group launch

Date: 12/02/2024
Time: 10:00AM - 1:00PM
Location: Office of the Ombudsman, Dublin
Category: Community Event

ERKNet/ESPN/ERA Webinar:Overview of biostatistical approaches in clinical research of rare diseases

Date: 30/01/2024
Time: 3:00PM - 4:00PM
Location: Online webinar
Category: Lecture / Talk / Discussion

DUPHAT

Dates: 9/01/2024 - 11/01/2024
Time: 9:00AM - 5:00PM
Location: Dubai World Trade Centre, UAE
Category: Conference / Symposium

Challenges in kidney transplantation in infants

Date: 8/11/2022
Time: 1:30PM - 2:30PM
Location: Online Webinar
Category: Lecture / Talk / Discussion

Social Epigenetics Workshop

Dates: 4/10/2022 - 6/09/2022
Time: 10:00AM - 4:00PM
Location: Trinity College Dublin
Category: Workshop / Seminar / Course

Citizen Science for Psychological Wellbeing Training 2022

Dates: 26/09/2022 - 18/11/2022
Time: 12:30PM - 2:30PM
Location: Online via zoom
Category: Training / Learning & Development

IRISH SOCIETY OF HUMAN GENETICS CONFERENCE 2022

Date: 16/09/2022
Time: 9:30AM - 7:30PM
Location: Radisson Blu Hotel Dubin
Category: Conference / Symposium

IFNA UK-Ireland Webinar Series - Midwifery practice and family health and wellbeing

Date: 6/09/2022
Time: 9:15AM - 4:00PM
Location: Online
Category: Workshop / Seminar / Course

The Importance of an All Island Perspective in Children and Young Peoples’ Research WEBINAR Aug 2022

Date: 29/08/2022
Time: 12:30PM - 2:30PM
Location: Online via zoom
Category: Lecture / Talk / Discussion

COVISION webinar 2022

Date: 29/06/2022
Time: 11:00AM - 12:30PM
Location: Online via zoom
Category: Lecture / Talk / Discussion

EUROPEAN SOCIETY OF HUMAN GENETICS CONFERENCE 2022

Dates: 11/06/2022 - 14/06/2022
Time: 8:00AM - 4:00PM
Location: ACV VIENNA AUSTRIA
Category: Conference / Symposium

RARE DISEASE FORUM: What’s new in rare disease research in Ireland?

Date: 8/06/2022
Time: 6:30PM - 8:00PM
Location: Zoom
Category: Conference / Symposium

ATTR Amyloidosis All Ireland Conference

Date: 28/05/2022
Time: 9:30AM - 4:30PM
Location: An Chúirt Hotel, Gweedore, Co. Donegal, F92 AP60
Category: Conference / Symposium

10K Sponsored Walk and 100K in May challenge for the NI Kidney Research Fund

Date: 14/05/2022
Time: 11:00AM - 4:00PM
Location: Cutters Wharf, Belfast, BT9 5FJ
Category: Benefits / Fundraisers / Reunion

WOMEN TECHMAKERS 2022

Date: 30/04/2022
Time: 9:00AM - 5:30PM
Location: Peter Froggatt Centre, QUB
Category: Conference / Symposium

Mendelian and non-mendelian inheritance

Date: 22/03/2022
Time: 1:30PM - 2:30PM
Location: Online Webinar
Category: Lecture / Talk / Discussion

image representing rare disease virtual symposium February 2022

Rare Diseases Research across the Life Continuum

Date: 25/02/2022
Time: 1:00PM - 5:00PM
Location: Remote public webinar
Category: Workshop / Seminar / Course

The genetics of human renal agenesis and renal dysplasia

Date: 22/02/2022
Time: 1:30PM - 2:30PM
Location: Online Webinar
Category: Lecture / Talk / Discussion

Northern Ireland Science Festival: The future of kidney research is STEAM powered

Date: 20/02/2022
Time: 1:00PM - 5:00PM
Location: Crescent Arts Centre
Category: Information Event, Performance

Systematic Review or Scoping Review: Masterclass by Dr Helen McAneney

Date: 3/10/2021
Time: 9:30AM - 4:30PM
Location: Online - Youtube
Category: Workshop / Seminar / Course

Living with a Rare Disease

Date: 25/02/2021
Time: 12:30PM - 2:00PM
Location:
Category: Workshop / Seminar / Course

“Participatory Research with Children” Masterclass by Dr Harry Shier

Date: 4/10/2021
Time: 1:00PM - 4:30PM
Location: Online - Youtube
Category: Masterclass

Rare Disease Research and Teaching Initiatives in Academia

Date: 18/02/2021
Time: 12:30PM - 2:00PM
Location: Remote public webinar - please register at the following link: https://ucd-ie.zoom.us/webinar/register/WN_yV6u-NNsRO2x0wBcvPV8zg
Category: Workshop / Seminar / Course

Unlocking the potential of genetics and genomics in Rare Diseases

Date: 11/02/2021
Time: 12:30PM - 2:00PM
Location: Remote public webinar - please register at the following link: https://ucd-ie.zoom.us/webinar/register/WN_4mG1CTDVS9OfeX4eK7LP_w
Category: Workshop / Seminar / Course

Learning more about advanced genetic testing - a prenatal perspective

Date: 24/07/2020
Time: 1:00PM - 2:00PM
Location: Remote seminar - please join via Microsoft Teams
Category: Workshop / Seminar / Course

Rare Disease Day 2020

Date: 28/02/2020
Time: 9:15AM - 4:00PM
Location: Riddel Hall: https://www.qub.ac.uk/sites/campus-food-drink/RiddelHall/
Category: Conference / Symposium

Rare Disease Research above and beyond

Date: 30/01/2020
Time: 1:00PM - 2:00PM
Location: Level 2 Seminar Room, Institute of Clinical Sciences, Block B, Royal Victoria Hospital
Category: Lecture / Talk / Discussion

RARDTAC - carer focus

Date: 16/01/2020
Time: 12:15PM - 2:30PM
Location: Bangor Carnegie Library Hamilton Road Bangor, Co. Down BT20 4LH
Category: Community Event

Rare diseases and specialised commissioning in England - genomics, research and access to medicine

Date: 9/01/2020
Time: 8:30AM - 5:00PM
Location: The Caledonian Club, 9 Halkin Street, London SW1X 7DR
Category: Conference / Symposium

RARDTAC - living with a rare disease

Date: 9/12/2019
Time: 10:00AM - 2:00PM
Location: Ards Blair Mayne Wellbeing and Leisure Complex 1 Dairy Hall Lane, Newtownards, BT23 4DB
Category: Community Event

UK Rare Disease Forum Conference

Date: 29/10/2019
Time: 10:00AM - 4:00PM
Location: City of Edinburgh Methodist Church, 25 Nicholson Square, Edinburgh, EH8 9BX
Category: Conference / Symposium

2019 All Ireland Vasculitis Conference

Dates: 4/10/2019 - 6/10/2019
Time: 4:00PM - 2:00PM
Location: Clare Lodge Holiday Centre https://www.svp.ie/what-we-do/holiday-centres/clare-lodge-holiday-centre.aspx
Category: Conference / Symposium

RariTea 2019

Date: 4/03/2019
Time: 10:30PM - 2:30PM
Location: Harrison's of Greyabbey
Category: Community Event

International Rare Disease Day 2019

Dates: 28/02/2019 - 28/08/2019
Time: 9:00AM - 2:00PM
Location: Chartered Accountants House, Pearse St, Dublin 2, Dublin, Ireland
Category: Conference / Symposium